Hillary and I finally came home today after almost 6 weeks in the hospital. It’s been a long haul but the wonderful team of doctors and nurses at Basingstoke have done a good job of getting me back on my feet and building up my strength. I put on 10 kilos during my stay, thanks to intravenous nutrition (TPN). Tomorrow I will start having TPN at home. A nurse will come to train Trend and me so that we are able to do it ourselves. It means that each evening, I will have a 12-hour drip of all of the calories and nutrition that I need as I am not really able to eat anymore. My tummy has got to a point of being very big and uncomfortable which is normal for this disease.
As a result, I will be back at the Hampshire Clinic in two weeks’ time for another operation major like the previous three. Mr Moran will take out as many of the tumours as he can as well as all of the gel and part of my bowel. However, we are still waiting for the transplant, so if organs come up in the meantime, I will go straight to the transplant surgery. If not, this will give me some relief while I continue to wait. I am a difficult match for organs, so it will take some time.
I can’t really describe how I feel about the upcoming surgery. As I know what to expect, part of me is really dreading it. However, as I am very uncomfortable and it’s getting worse by the day, the other part of me is looking forward to the relief of having the tumours and gel taken out. It will be complicated, particularly as it’s my 4th and there will be a lot of scar tissue, but we really don’t have much choice. I’m lucky that I have such a good surgeon who will do the best he can do.
In the meantime, thank you for all of your kind messages and good wishes. I’m sorry if I don’t reply to all of them or if I’m not always up to a chat. I have good days and bad days and I have to just go with the flow.