I had originally planned to use Yazz’s ‘The Only Way is Up’ for this blogpost, however this week it was clear that Sheryl Crow’s ‘Everyday is a Winding Road’ was more appropriate. Overall, I’ve had a great couple of weeks. The day before my last chemo I testified before the government’s BEIS (Dept. For Business, Energy & Industrial Strategy) Committee on the Gender Pay Gap, which was not as scary as I had anticipated – and the feedback was good. I then had a brilliant final chemo salon on the 18th April with good friends, soup, bread and chocolate brownies. It was followed by some great weather and a really nice PMP Well-being day at Basingstoke after I got my pump disconnected on the Friday. Fantastic to meet others with the rare disease and to see how well they are all doing. It’s a really supportive group. I then had a fab visit and lunch with Joanna and Christy from Nova Scotia and Madelaine on the Saturday and I was feeling great and ready to get back to normal. However, I was a bit shocked when I went for a 6.5km dog walk on Sunday and was a bit slow and short of breath. Not what I had expected! I thought I was still in good shape – but that is one of the side effects of chemo
Annoyingly this final chemo really knocked the wind out of my sails and I spent Tuesday and Wednesday being violently ill at home, having attempted to go into work both days. I missed some great events and was gutted to be slowed down, but Trend and various friends reminded me that I had just finished a 12 cycle full-on dose of poison and I needed to accept that there would be some impact and that I should rest and recover. I am definitely not a good patient and not good at taking it easy. Happily I was better by Thursday and on the 5:50am train to London for a full day which ended with Fiona Murden’s book launch (Defining You) for which I wrote the forward.
I have been a bit slow this weekend and enjoyed a visit from Jeanette who was over from Canada. Fortunately, I haven’t been ill since Wednesday, but I have definitely been a bit more tired in the evenings. I am on the road to recovery, but I need to remind myself that there may be ups and downs along the way and I have to adjust for the downs and not have such high expectations of myself – even Wonder Woman must have some off days!
Wednesday is my PET and CT scan and then we see my oncologist Thursday – I’ll write an update after that meeting.
Still feeling upbeat and positive and while I will miss the social aspect of the chemo salons and the lovely Healthcare at Home nurses, I am so pleased not to be having chemo next Wed. I will plan for a post chemo salon barbecue in June (we shouldn’t need chemo as an excuse to get together).
‘Everyday is a winding road
I get a little bit closer
Everyday is a faded sign
I get a little bit closer to feeling fine’